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KMID : 0856920070100030137
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Journal of Hospice and Palliative Care
2007 Volume.10 No. 3 p.137 ~ p.144
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Needs of Patients and their Families in Hospice Care Unit
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Kim Hyoung-Chul
Kim Eun-Sook
Park Gwang-Hee
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Abstract
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Purpose: The purpose of this study is to identify and assess the needs of the cancer patients and their families and provide basic data to meet with their needs.
Methods: This is a descriptive study using questionnaire method. Questionnaire were collected by mail from 76 discharged patients from a hospice ward from May until the end of October, 2004, and data were analyzed by SPSS 10.0.
Results: Admitted patients had needs of pain control (85.5%), non-pain symptoms (63.2%) such as vomiting, dyspnea, ascites, etc, and emotional and spiritual problem solving (28.9%, 14.5%). Interests of patients were health care of himself/herself (65.8%), concern for their spouses left alone (32.9%), and future of their children (15.8%). In families’ needs of care of 5 areas,「information on patient’s status and treatment/nursing care」was shown most high score (3.48±0.62). In detailed questions, they request most ’to inform the prognosis of patients’ and the next is ’to inform the reasons that nursing care was required’. The next highest score was to ’inform family roles’ (3.39±0.64), and next was spiritual support (3.11±0.79), and emotional support (3.08±0.72). Expectations of family on the treatment were comfortable dying (73.4%) scored the highest. Patients’ families were satisfied with volunteer service most in service area (97.4%). The next was pain control (89.5%) and nursing service (77.6%).
Conclusion: Health care staff should identify the actual needs of families caring cancer patients and they should operate realistic programme which can give continuous and assistance by reflecting individual needs and characteristics. With these strategies, the quality of life of patients and families can be improved. And then the intervention programme should be developed to measure subjective nursing care needs of terminally ill cancer patients and their families.
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KEYWORD
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Hospices, Patients, Family, Health services needs
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